Going to the gym
Eating in a restaurant
Things that are uncomfortable
I drive a lot for work and need to plan accordingly because of my visiom
Anything I used to do that involves air movement.
I have to keep my house dark much of the time so I can't enjoy sitting near a window.
I work only part- time.
Things I can’t do anymore
I cannot shop in big box stores or grocery stores. The lights bother me too much and I cannot see.
work, socialise, travel. And fatigue so easily as eyes make me feel so exhausted.
Drive a car or go anywhere in public without feeling self conscious.
be anywhere where there are deodorizers or sanitizers or around people with perfume
I have not dared attempt to bathe or swim in a pool or natural body of water for over 20 years out of concern for damage that would result to my tear film for a period of hours or days afterward if water made its way into my eyes.